McMorris Rodgers, Capps Introduce National Pediatric Research Network Act

Jan 15, 2013
Disabilities
Health Care
Press

 

Washington, D.C. – Rep. Cathy McMorris Rodgers (R-WA) joined Rep. Lois Capps (D-CA) today to re-introduce H.R. 225, the National Pediatric Research Network Act.  They were joined by a bipartisan group of four colleagues.

The National Pediatric Research Network Act (NPRNA), which passed the House with broad, bipartisan support in 2012, would authorize the National Institutes of Health (NIH) to facilitate the creation of pediatric research consortia focused on pediatric diseases, such as spinal muscular atrophy (SMA).  The bipartisan bill was designed to help increase research and accelerate the development of clinical trials to treat rare pediatric diseases. 

“As a mother, I am reminded on a daily basis of the importance of our children’s health – and for that reason, I am proud to join with my friend, Congresswoman Lois Capps, to re-introduce the bipartisan National Pediatric Research Network Act – so we can build upon our nation’s commitment to pediatric medical research,” said Congresswoman McMorris Rodgers.  “Too often, research into pediatric disorders has lagged behind research into other medical conditions.  The time has come to take pediatric research to the next level, and this bill will do just that.  It will give new hope to millions of children – and their families – in this country.”

“Too many children—and their families—suffer from diseases that have no cures or even treatments. And despite the great research that has been done to help these children, there is much more we must do to strengthen our pediatric research agenda. That is why I am pleased to re-introduce The National Pediatric Research Network Act with my friend, Congresswoman McMorris Rodgers,” said Congresswoman Lois Capps. “This bill would go a long way to increasing, coordinating, and improving research on children’s illnesses–especially rare and complex diseases–and developing new treatments to fight them. Every parent’s worst fear is that their child becomes sick, and we owe it to every parent in America to do what we can to fight childhood illnesses.”

“As parents of a 5-year-old little girl battling spinal muscular atrophy (SMA), the leading genetic killer of young children, we're unbelievably grateful to our very own Congresswoman Lois Capps for her steadfast support of rare pediatric diseases. Research of complex and debilitating diseases, such as SMA, is extremely mature with many programs headed to human clinical trials in the near future. The timing of the re-introduction of the NPRNA couldn't be more critical and its impact could potentially be game changing for children suffering from diseases like SMA,” said Bill Strong, Co-founder, Gwendolyn Strong Foundation. 

In the 112th Congress, the National Pediatric Research Network Act passed the House of Representatives twice. It was first passed unanimously as a standalone piece of legislation and then again when it was joined with the Prematurity Research Expansion and Education for Mothers Who Deliver Infants Early (PREEMIE) Act, but the House and Senate were unable to come to an agreement on a final bill.

 

###

Recent Posts


Oct 10, 2024
Standing with Israel

McMorris Rodgers Leads Bipartisan Legislation to Foster Alignment of Middle East Partners, Counter Iran

Washington, D.C. – Today, Eastern Washington Congresswoman Cathy McMorris Rodgers (WA-05) introduced bipartisan, bicameral legislation to improve security and military readiness between the United States and Abraham Accords nations. The Learning Integrated National Knowledge (LINK) Act would connect strategic, operational, and tactical senior commanders through an exchange program to foster greater integration and alignment.  This […]



Oct 7, 2024
Agriculture

McMorris Rodgers Helps Introduce Bipartisan 4-H Week Resolution

Washington, D.C. – Today, Eastern Washington Congresswoman Cathy McMorris Rodgers (WA-05) helped introduce a bipartisan resolution to designate the week of October 7 through October 12 as “National 4-H Week.” She was joined in introducing the resolution by the co-chairs of the 4-H Caucus, Reps. Glenn “GT” Thompson (R-PA), David Scott (D-GA), and Henry Cuellar […]



Sep 24, 2024
Standing with Israel

Abraham Accords Caucus Introduces Bipartisan Resolution to Promote Peace and Tolerance in Education

Washington, D.C. – The Co-Chairs of the Abraham Accords Caucus, Cathy McMorris Rodgers (R-WA), Brad Schneider (D-IL), Ann Wagner (R-MO), and David Trone (D-MD), have introduced a bipartisan resolution encouraging the U.S. Department of State and civil society organizations to further the goals of the Abraham Accords by promoting peace and tolerance through education across […]